Hope 24 2021

I’m so sorry I haven’t blogged in ages! Been having a lot of sleep and energy issues recently and sleeping more than I’m awake, and haven’t had the motivation to do much writing. I’ve started a few posts and not finished them, and I really am going to try to keep up with blogging more…

Last weekend was Hope24, which is my favourite running event of the year. It takes place in Newnham Park near Plymouth and it’s all trail running, across a field and through woods and it’s so scenic. Every lap is five miles and you can set a tent up near the start/finish line to keep food etc, or to have a sleep. The atmosphere is amazing and the organisers are incredible. Such an awesome event!

I was a bit nervous going into the run because I haven’t been running much recently as I’ve been sleeping so much and had no energy. I’d also run London to Brighton a few weeks ago which was horrible- so, so hard both mentally and physically and I wasn’t sure another ultramarathon was a good idea. But I love Hope and didn’t want to miss my favourite race so I went ahead with it. I made sure I had lots of sleep the night before and stocked up on electrolyte tablets with caffeine to try to stay awake during the run!

The first lap wasn’t too eventful but was HARD. I genuinely think my body has forgotten how to run- even when I try to make running movements, it’s like forcing my body through sludge and I’m slower than if I were walking. At the end of the first lap, a guy I know asked why I wasn’t running and my reply was “I am!”; my running speed was so, so slow and I couldn’t go any faster. London to Brighton was the same and it’s so frustrating to consistently get overtaken by walkers. But I was determined to run as much as I could however slowly I was going.

Mentally, the race was really, really tough. I’m having a lot of issues with obsessive and distressing thoughts at the moment and it was really hard to distract from them. I tried everything I could think of- DBT skills like observing and describing my surroundings, turning the mind, radical acceptance (which I still can’t get my head around and which I’m planning a blog post about), half smiling, thought blocking, imagining thoughts on a conveyor belt, thinking of thoughts as firings of the brain… I even tried listening to Blackadder in the hope that laughing would help! But nothing seemed to make any difference, and it got worse as the race went on.

The scenery was amazing though and describing it (out loud) did help to distract a bit even though the thoughts came back as soon as I stopped. The route was so nice- up a hill and through some trees, over a field and up another hill, a long downhill through the woods then up the other side. No bluebells this time of year but there were foxgloves and thistles.

After 20 miles, I stopped for a coffee break as well as the caffeine tablets because I was starting to get really tired by that point. Had a cereal bar and a ten minute rest, then back to the running. I had a ‘photography lap’ where I took some more photos then it started to rain so I had to put my phone away.

By the evening, I was completely exhausted and finding the obsessive thoughts really, really hard to manage. I was also feeling upset and angry which didn’t help, and having a lot of negative urges. It had also started to rain which got heavier as the night went on, and by midnight the trail had turned to rivers of mud and it was really hard to run without falling over, especially when you’re already totally distracted and feeling horrible. At about 1am, I stopped to get more coffee and some food, and waited for the rain to ease off which ended up being two hours later by which time I’d tried to quit then asked for my timing chip back!

At 3am, the rain was more drizzly than deluge so I headed back out again. To be honest, I can’t remember much of the night apart from feeling really upset, crying a lot and lots of obsessive thoughts. When it got light, the rain was on and off which, along with the light, helped a bit but by 7am I couldn’t deal with the thoughts any more and decided to stop. It was the right decision, I think- I was so tired I couldn’t see straight and things were moving that shouldn’t be, and I felt horrible. So I handed my timing chip in and got my medal.

Once I got back to the B+B, I slept all day until 6.30pm, briefly tried to watch the F1 but fell asleep partway through and slept till 6am the next morning. Drove home and had DBT, then fell asleep again for the rest of the day! So I think it really was the right decision to stop. I feel rubbish about it though :/ it’s the first time I haven’t finished a 24 hour race and I feel like I should have been able to complete it. But I’ve realised that the people who keep telling me that I’m not well enough for ultrarunning are right- physically I don’t have the energy and mentally I can’t deal with the extended thinking time. But it’s yet another reason to fully commit to DBT and trying to recover!

Thoughts about identity

At college today, we were set a photography project exploring personal identity and what that means. I found this really, really hard because I’m finding it difficult at the moment to feel ‘real’ and that I actually exist outside of mental illness, and that I actually have an identity at all. Which got me thinking a lot about what identity actually is in the first place and what it means. We had to get into pairs to discuss and make a mind map about identity, and it was really interesting to hear other people’s views- about personality, hobbies, interests, memorabilia, clothes and lots of other things. I’m still not totally sure what it actually ‘is’ though.

It got me thinking a lot about this year in particular and how my own concept of ‘identity’ has changed especially over lockdown. Before, my identity used to be work and the children I worked with, and that felt like my main focus and purpose in life. But then lockdown happened, school closed and suddenly all I was left with was ‘me’ outside of work which I found really difficult to deal with. And then things got more complicated, I handed my notice in and now I feel like I don’t really exist at all. I’m still ‘doing’ things- I’m back at college, I volunteer at a homeless shelter and have just started volunteering back at school again, I work in a supermarket and occasionally at a pub but I still don’t feel like any of that is ‘me’ and I really miss having the kids I mentored to focus on and have as my ‘purpose’.

Lockdown was horrendous- I really didn’t cope with being on my own in the house all the time and felt rubbish nearly all the time. I couldn’t focus on anything and had no energy, I stopped running, I hardly wrote at all and spent a lot of the time crying or sleeping, and it’s been hard to get out of that pattern. I still don’t feel ‘real’ or like I actually exist as a person and it’s horrible. I think mental illness really does take away a massive part of your identity and sucks it into itself, and I don’t know how to get out of that when you can’t seem to fully engage with anything else. Which makes this project doubly hard!

I wrote a Facebook status a while ago asking friends what they associated with me because of how I was feeling and I’m planning to work the answers into an art piece to try to make a visual representation of who I actually am so that I can look at it when I feel particularly bad and try to feel more like an actual person, and I might try to use some of those answers in the photography project. Sorry this post isn’t massively long or interesting- I’m still finding it hard to focus on or engage with anything! But will try to keep the blog more updated and maybe post some work from college at some point…

Thoughts on social distancing and isolation

I’m so sorry I haven’t written in so long; I took the blog offline for a while because I got a bit paranoid about people reading it and became completely convinced people I knew were reading it even though I hadn’t shared it with them.  I’ve since changed the domain name and *hopefully* if anyone was, then they won’t be able to find it now but I don’t know how they would have found it anyway and tbh, it was probably just me being over-paranoid anyway!

SO…back to blogging.  I’ve really missed it; it’s one of the only ways I can try to actually make sense of my brain in a way that other people can understand and maybe relate to, and I miss that connection.  Which is especially true now we’re in the middle of social distancing and self isolation!  It’s a weird and disconcerting time for everyone and I’m swinging between being kind of relieved that for once it’s not just me feeling lonely, anxious and guilty all the time but then feeling really guilty for thinking that and just generally overwhelmed by the whole situation- again, like most of the world!

It’s weird that in one sense, not much has really changed- I was signed off work for two weeks before lockdown started anyway and it’s not like I had a particularly active social life (or even one at all).  But I had school and it was the hope of going back to school that had kept me going while I was signed off, and the idea of schools closing before I could go back felt really horrible and disorientating.  I know that a massive proportion of the country are feeling similar with schools closed and exams cancelled, teachers are feeling disorientated and kids are stuck without the structure of school, and for many Year 11s and Year 13s, they didn’t even get a chance to ‘leave’ school properly.  So in the context of that, how I’m feeling really doesn’t even compare to how a lot of people will be feeling at the moment but for me, it was the loss of hope and possibility of structure, purpose and social contact that really got to me the most.  And it’s still so, so hard to deal with.  I’ve set up a website of fun activities, quizzes and puzzles for kids off school to try to keep them entertained and I’m updating it every day but it still doesn’t feel ‘real’ or like there’s any actual point to it.  Trying to focus on it as a distraction and purpose but it’s hard when I don’t know if any kids are actually using it!  It’s Purple Jedi Activities if anyone’s interested 🙂

It’s hard to work out what’s going on at the moment because before coronavirus took over the news and lockdown started, I was already having issues with medication, mood swings, anxiety and paranoia and the current situation really hasn’t helped.  It’s been going on for months- I started to feel rubbish again just before Christmas and it got progressively worse up till February when I kind of hit a massive low and just felt horrible, guilty and lonely all the time but so much that it hurt.  I had a couple of overdose attempts (which I’m rubbish at anyway- both times I panicked afterwards, tried to throw up, felt ill later and went to A+E) and have been having a lot of issues with mental health services recently because I “make people anxious” and it’s a “barrier to treatment” but I honestly don’t mean to and it’s making me feel so shit and trapped.  Long story; I ended up increasing medication to the point when I felt genuinely stoned and spun out all the time which wasn’t safe, was signed off work and have been trying to get the right balance of medication since then.  Currently on a mix of vortioxetine, quetiapine, pregabalin, lorazepam and zopiclone and trying to find the right amounts of each one so that I’m not too hyped, panicky or suicidal but can also function relatively OK day-to-day.  Really tough!!

But anyway, that’s just background :/ I think even without the Covid-19 situation, I’d be a bit all over the place atm but now it’s like the world has honestly gone nuts.  And for once it’s not just me!  It’s crazy to realise it’s a global issue and that the majority of the world is feeling scared, overwhelmed and anxious atm which is weirdly reassuring as well as a bit scary in itself.  For me, the hardest parts are the lack of structure which leads to feeling chaotic, ‘vertigo-y’ and like there’s no point, and the isolation which leads to intense loneliness and feeling cut off from everything.

One of the things I really struggle with is the idea that people will totally forget I exist if they don’t see me, and it’s so so hard not to keep contacting people I care about all the time to check.  And it’s SO BLOODY LONELY isolating on your own and not knowing when you can see a real person again.  I’m not a physical contact-type person but right now, I could really, really use a hug and I need it so much it actually hurts- my whole body is physically aching and tingling with anxiety and loneliness. And that must be a million times harder for people who are used to physical affection!

I realised recently that one of the main criteria for diagnosis of BPD is ‘fear of abandonment’ and being isolated on your own feeds into it- it really does feel like you’ve been abandoned by everyone and everything and I’m having to keep reminding myself that it’s a global situation and not just ‘me’- support groups stopped because they had to with social isolation not because they didn’t want me in the group, I’m not on the school rota v often because they’re limiting staff in school not because they don’t want me in, people aren’t messaging back because they’re overwhelmed and scared like everyone atm or busy with other things not because they hate me, social distancing was not introduced because I’m too intense and people need a break from me! I know it sounds over-dramatic, self-centred and ridiculous (which it is) and I know that rationally but it feeds into the main idea that people just don’t want you around which still really hurts and makes you feel rubbish.

One of the other criteria for BPD is ‘chronic feelings of emptiness’ which I’ve always referred to as ‘vertigo’ and it’s so, so intense at the moment without any real purpose or connection.  For me, that’s the part that leads to pretty much constant suicidal thoughts because there really is no point and I’m so scared people I’m close to will forget about me, and it’s so hard to manage.  But I can’t act on any of it atm anyway because I don’t want to put any extra pressure on the NHS by having to go to A+E so feeling really trapped and rubbish.  Which I’m trying to channel into more positive distraction but is leading to a lot of negative behaviours which I hate but tbh if it means I’m not overdosing or ending up in A+E then it’s not the end of the world.

The other overwhelming feeling atm is guilt.  Which tbh isn’t just atm- I feel guilty A LOT of the time anyway but it’s constant now and literally taking over most other feelings.  Part of it is justified- I know I can be too intense and needy and although I really try to manage it and not keep contacting people, I am still ‘too much’ when I talk to people because I honestly am feeling so horrible so much of the time and it’s hard not to let that show.  But I keep apologising and trying to let people have the choice if they let me contact them or not, but I still feel shit for being like this in the first place.  I really am trying to change it- I’m doing a lot of online courses in Food and Nutrition, Health and Social Care and some self-help courses for BPD which challenge viewpoints and behaviours but it seems to be taking a really long time to see any change at all which is frustrating and I just wanted to be a nicer, less draining person.  But at least one positive to social distancing is that people don’t have to put up with me in person any more!

One of the other issues I’m finding hard (and links to guilt) is feeling like everything is my fault.  This is something I’m challenging a lot atm- I know rationally that I am not all-powerful and I definitely didn’t start coronavirus or create the crisis that the world is in at the moment, but I still feel really, really guilty that people are dying all over the world and it feels like I should be doing more to stop it.  I’ve signed up for NHS volunteers and for social care volunteering but haven’t heard back yet, and I’m aware I’m a drain on NHS resources even without Covid-19 pressure which makes me feel really guilty.  I’ve been in touch with CMHT, ED services and the crisis team a lot over the last few weeks because I genuinely don’t feel safe in the house on my own, partly because of intense suicidal thoughts pretty much every night, partly because of medications making me feel stoned or spun out and partly because I’m still getting occasional extreme mood swings which can make me really impulsive.  But they can’t do much atm- they’re not admitting any new inpatients because of the pandemic and all they can really suggest is to keep a mood diary, have a crisis plan and take lorazepam which I’m doing but it still doesn’t feel safe a lot of the time.  But I’m still trying!!

The last issue I’m going to talk about here is the idea of feeling chaotic, out of control and scared which for me, is a big trigger for eating disordered behaviour which I’m trying SO HARD not to fall back into atm.  It’s taken 20 years and some v direct honesty from a couple of friends to get into a ‘healthy’ eating routine and I really, really don’t want to lose that.  So I’ve literally made a timetable to structure the day around a ‘school day’ with set mealtimes which I have to stick to.  And it feels so much safer because it’s not my ‘choice’ and apart from a couple of really horrible, chaotic days, I’ve pretty much managed to stick to it.  Will share it here in case anyone else finds it useful 🙂

 

But even though the world is chaos and scary, there have weirdly been some positive effects!  Which I’m trying to focus on and see as proof that things can change…

  1. Thanks to necessity for medical appointments, helplines and crisis calls, I can actually make and receive phone calls now without getting panicky!  Which is a HUGE thing for me.
  2. I have several friends who are amazing and some of whom put up with sometimes ridiculous texts or calls.  Several being a BIG change because before I’ve only managed to keep one or two friends at a time and now I have a few!  And I’m really trying to believe they won’t forget I exist just because I haven’t contacted them in a few days…
  3. Social media is not all paranoia and anxiety and with only close friends, can be an absolute lifeline.
  4. I can go to the supermarket only twice a week, buy more food at once without being convinced everyone will think I’m a greedy, lazy bitch and actually keep the food in the house without bingeing on all of it!!  Which, as someone who used to only be able to buy a day’s food at once, is a BIG change.  Mostly helped by my equally intense fear of germs meaning that I’m genuinely scared to go to the supermarket but I’m still taking it as a positive!
  5. I now wash my hands in a normalish way.  Which again is a big thing- I used to have to use 2-4 pumps of handwash and sometimes 2-4 more depending on if they ‘count’, and careful not to accidentally hit 13 overall so sometimes even more but now, thanks to restrictions on how much handwash you can buy, it’s 2 pumps ONLY and they both necessarily count.  And it’s amazing how much less anxiety I have now about washing my hands!
  6. I bought a weighted blanket to help with anxiety and needing a physical ‘hug’, and I’ve never slept so deeply in my life.  OK, it’s still not for very long and not always at night but it’s seriously amazing!
  7. Focussing on Jedi living is actually a lifesaver atm.  I won’t go into it too much now because I’m planning a whole post on it later on but there’s something really grounding about connecting with a Force greater than yourself and trying to really focus on quieting your mind and letting go of attachments and fear.  I know it might sound a bit weird but it honestly does really help.
  8. I have never spoken to my little cousins on FaceTime so much in my life (or ever, in fact)!  They’re all off school and bored atm and it’s so nice to connect with them, watch them play lego/do crafts/just hang out.  Living in England while they’re in Scotland means that sometimes I miss out on my little cousins growing up and it’s so nice to connect with them properly now.  Feels like I’m actually in Scotland with them!

Anyway, this post is a lot longer than I’d intended so will leave it here 🙂 REALLY hope everyone is managing OK and sending lots of hugs to anyone else self isolating on their own.  It really is hard and can feel like it’s never going to end but IT WILL and reach out to as many people as you can ❤

Another weirdly positive psychiatrist appointment!

Sorry if this blog post doesn’t make a lot of sense- am currently feeling overwhelmed and totally exhausted but wanted to try to get some thoughts down before it all turns to mush!  I had an assessment today at the eating disorder service where I was inpatient from 2005-2007 and outpatient until 2010 which I was really, really nervous about beforehand but actually went surprisingly well.  Trying to get my brain into some sort of sense atm so if it seems a bit jumbled, I’m really sorry!  Haven’t been feeling great over the last few weeks and have had a lot of negatives thoughts/urges which have been really hard not to act on and my brain is pretty much total fuzz most of the time.

Was so, so nervous before the assessment- apart from visiting a friend a few months ago (which was also really weird and I found hard to deal with), I haven’t been back to the unit for nearly 10 years and it felt really strange going there this morning.  I was also extra-nervous because I’ve had a lot of contact with doctors over the last couple of weeks  because of feeling rubbish and spent a night in A+E last week which the doctor said he would pass on to the psychiatrist so I was a bit worried about what sort of impression I was going to make.

I decided to walk into town (about an hour and a half) in the hope that I’d calm down a bit before getting there but was still really shaky and feeling sick by the time I got there.  It took three loops of the road to actually get to the door and my brain was completely fuzzy by then- when I was filling in the forms in the waiting room, I kept getting spellings wrong including my own name!  Luckily I didn’t have to wait too long and the psychiatrist took me to a room which I’d thankfully not been in before because I think that would have been way too weird.

It was a new psychiatrist who I hadn’t seen before but I’d heard about him from a friend who also sees him, and he was really nice.  He had my notes from last time which was a big relief because I didn’t have to start totally from scratch, and he actually seemed to listen when I was answering the questions.  The initial assessment took nearly two hours then had to go for ECG and blood tests, then back for physical obs and a chat about the outcome of the assessment- LONG day and was absolutely exhausted afterwards but hopefully worth it.

The assessment was really, really thorough and so different to ED assessments I’ve had before.  He didn’t give me any screening questionnaires or quizzes to fill it (which was a definite relief because I HATE them and usually end up annotating them so I don’t come across as completely hopeless) and just asked lots of questions.  It wasn’t all about ED thoughts/behaviours either which was another big relief because most of what I’ve been struggling with recently is more mood-related and negative urges, and he kind of linked everything together which again was really positive compared to the really frustrating ‘boxes’ approach that I’ve experienced a million times before where ED doctors only talk about ED symptoms and other psychiatrists won’t talk about ED-related issues and usually I’d just get told that it’s all autism-related anyway.  But it wasn’t like that at all and he even seemed to ‘get’ what I was trying to say when I couldn’t find the right words to describe it!

ECG and blood tests went OK- my veins are rubbish so as usual, it took several tries, butterfly needles and dizziness before actually getting any blood but for once I didn’t faint which was a big relief!  Then back over the the unit for physical obs.  The results of the ECG were slightly abnormal so I have to go back for a ‘heart echo’ and have 24 hours wearing a heart strap which I’m a bit nervous about but my ECGs are often a bit weird so wasn’t too worried about it.  Physical obs were fine; I get a bit nervous about people being that close to my body and it must have showed because the doctor started talking about random stuff to distract me and it turns out he used to watch Bad Girls which is the TV show I’ve been obsessed with since I was 13 and is currently the only thing that seems to work to distract from negative urges!

After the physical checks, I had to see the psychiatrist who assessed me along with the consultant to discuss the outcomes.  Looking at it at first, it wasn’t anything earth-shatteringly different from what I’ve had before but the wording IS different which completely changes my treatment plan which is kind of a big deal.  He gave me a formal diagnosis of borderline personality disorder and atypical anorexia, and said that he is going to refer me to a dietician and for dialectical behaviour therapy.  The main difference is that he thinks the ED is part of the “bigger picture” of BPD whereas before, ED and autism have always been the ‘main issues’.  I’ve had BPD mentioned several times before (most recently at another relatively positive psychiatrist assessment: Positive psychiatrist appointments actually exist!!) but always as ‘traits’ instead of a formal diagnosis.  Having an diagnosis of it as the primary issue means that I can actually get specialised treatment for it which is a MASSIVE relief because for me, it’s the extreme moods, fixations on people, paranoia and suicidal thoughts/urges which are the hardest to deal with and I really do want help to learn to manage them.

I’m still trying to process it properly and am feeling v overwhelmed at the moment- overall, it took nearly 5 hours and was completely exhausted afterwards, but feeling strangely positive about it and especially about being able to access dietician support and DBT.  Even though my weight’s ‘normal’ thanks to medication side effects, I still find it hard to vary my diet outside of porridge and soup, binge on fruit most nights and can’t eat in front of people or outside of ‘set’ times which I really, really want to work on.  I’ve been teaching myself DBT skills for years now but it’s really hard to put in into practice on your own and I’m really hoping that being able to access it properly will help.

I fell asleep as soon as I got in from the assessment because I was so exhausted after it but this evening has been the first time in weeks that I’ve actually felt motivated enough to do something other than watch Bad Girls (again) or just lie on my bed feeling rubbish which has been most of my summer holidays so far.  So I’ve actually written a whole blog post (!), semi-cleaned my kitchen and going to try to stay up till at least 10pm instead of taking sleeping tablets so I can go to bed at 8pm which is what I’ve been doing over the last few weeks because evenings have been horrible and so hard to deal with.  Trying to keep hold of the positive feelings and really hoping it’ll last…!

Positive psychiatrist appointments actually exist!!

This is a bit of a random post because it’s not based around any particular ‘theme’ or event (although to be honest, not many of my recent posts have been!) but thought it was worth a blog post anyway because for me, it’s pretty massively significant. On Monday, I had an assessment appointment with a new psychiatrist which I was really nervous about and not expecting much from it (usually I just get told that because of autism, they can’t help). Amazingly, it was a weirdly positive appointment!! She was very direct and honest which I need, and ridiculously thorough to the point that the appointment took nearly two hours and she’s making another one to finish it off.

The most amazing thing was that she actually didn’t just write everything off as autism- she thinks that personality traits (specifically ’emotionally unstable personality disorder’ AKA borderline personality disorder) are more of an issue at the moment and wants me to read up about it more before the next appointment. AND she’s willing to actually work with me on it!! WOW. Have been reading about it and literally it’s like someone read my brain. So weird and amazing to read about other people experiencing the same sort of thing and to have an actual, real ‘reason’ for feeling the way I do.

This book in particular is amazing:

It’s a really detailed and well-written ‘guide’ to BPD and writes in detail about all the different symptoms, thought processes and behaviours without judging or sounding overly negative or stigmatised about it which a lot of the articles I’ve read have been. It actually made me cry to read it because it made so much bloody sense. Even obsessions, being too ‘intense’ and issues with keeping friendships! I could literally quote half the book in this post but am going to focus on a few pages that I found really, really useful.

This page is incredible. It sort of links to something a friend said to me a while ago that you can’t ‘get rid’ of obsessions or extreme emotions, you just need to learn to manage them and this book explains it in such an amazingly positive way. And it even says that learning to manage the intense feelings will eventually mean that they are less intense which would be an absolute miracle!! Having had 19 years of feeling like I’m never going to be able to deal with it, it really seems like an unreachable goal but definitely one I’m willing to work bloody hard to achieve. Honestly, if I ever manage to be able to deal with intense feelings and obsessions, I think my life would be relatively good and I’d be ‘normal'(ish). New life goal!!

There’s even an actual link to eating disorders in the book! And the really amazing thing about it is that I can totally relate to how it links BPD and ED, much more than I can relate to most ED-specific books or articles. For me, it’s always been about managing extreme emotions and obsessions- low enough weights actually stop them completely which was why I was desperate as a teenager to lose weight. The main reason I binge isn’t for the actual ‘binge’ part; it’s because throwing up helps to shift the intense vertigo-y vacuum inside my stomach. Apart from exercise, that’s the only thing that actually helps with it and gives me a sense of relative calm.

Similar to above, restricting your diet can make you feel calmer and more in control. I can relate absolutely to this page and although i know it’s stereotypical ‘ED’ to be about control, mine has always been more about not eating certain foods or food groups than the weight itself. That came later and only because I realised it stopped intense feelings and obsessions.

The hardest part of the whole autism/BPD mix for me is making, keeping and managing social relationships. I lose A LOT of friends from being too ‘intense’ and I’m constantly scared that people are annoyed or upset with me, find me too annoying, boring or clingy, or don’t want to be friends with me any more. It’s bloody hard not to keep texting friends to check and I used to do that a lot, which would lead to friends asking me not to contact them any more. Now, I’m a lot more aware of it and it really is a relief to read that other people experience the exact same thing and I’m not just a paranoid, intense, horrible person. I can also relate to wanting to just give up on friendships completely but the intense loneliness is too hard to deal with. Makes you feel like you’re trapped in a cycle of paranoia and loneliness that you can’t escape from. But this book says that this is one of the symptoms which you can learn to manage through DBT and awareness which seems too good to be true but am DEFINITELY willing to try…

The last page I’m going to talk about is about self harm. When I read this, I had to re-read it because it described exactly the thoughts and urges I experience on a regular basis. It honestly is an intense self-directed anger and hatred that makes you want to literally scrape your skin off and rip out your flesh which gets channelled into cutting or hitting depending on the situation. When it’s overly intense, it can get to the point where you want to disappear or not exist which can lead to (for me anyway) overdose of medication but I always end up throwing it up ten minutes later because I don’t actually want to ‘die’, just not exist or more specifically, for the intense feelings to not exist. It’s like wanting to kill a very specific part of you (I’ve been calling her ‘borderline bitch’) which I hate and would do anything to get rid of.

The other really positive aspect of the appointment is that I’m changing medication!! Coming of quetiapine which has caused horrible side effects and increasing aripiprazole to make up for it. Really, really hoping it helps!! Anyway, would DEFINITELY recommend this book to anyone who has, knows anyone who has or is interested in BPD/EUPD- it’s an incredible book 🙂