Even more thoughts about ED recovery!

[Obvious trigger warning: this post is about eating disorders and has a lot of honesty that might be triggering for people experiencing EDs, even if you are recovered.]

I was talking to a friend a few days ago and she said that I was doing really well with eating regularly and being a healthy weight, which I know is a positive. But she also said that I don’t have an eating disorder any more which for some reason really upset me and I wasn’t really sure why- I know it’s a good thing, I don’t want to be seen as having an eating disorder or be defined by it, I want to be healthy and I REALLY want to have a baby but it still made me feel really weird and upset. Which got me thinking even more about what eating disorder recovery actually is and what it means. I’ve written some posts about this before (Thoughts about ED recovery and (More) thoughts about ED recovery) but I’m realising more and more about it the further into recovery I get.

I know that recovering from an eating disorder is much more than just gaining weight and eating three meals a day- if that’s all it was, I’d have recovered every time I was an inpatient! But I’m still not totally sure what it actually means. I still have a very strong ED ‘voice’ in my head all the time, I get anxious every time I eat or am near food that’s high in calories (which is a challenge since I’m currently working in a pub!) and I eat the same foods every day but I don’t act on the ED thoughts or urges- I don’t skip meals (unless I’m in a situation where it’s physically impossible such as in the middle of a shift at work), I don’t binge or purge any more, I eat even when I feel so anxious my stomach is churning and I feel physically sick, I’m even drinking bloody Fortijuce because I need a certain amount of calories to absorb one of the medications I take. So on a surface level, maybe I am ‘recovered’. But that thought genuinely terrifies me and it’s taken a lot of thinking, honesty and admitting things I’d rather not to work out why. Which is what this blog post is about, and PLEASE don’t judge me!!

I know it’s not possible to recover from an eating disorder and still have one- the two are mutually exclusive. But it IS possible to both want to recover and still (secretly) want to have an eating disorder and I think it’s a lot more common than most people realise. I want recovery- really. I want to be ‘normal’, I want children, I want to be able to eat naturally and in front of people, not feel anxious around food, not think about food every bloody minute, be able to eat out or at friend’s houses, even have a normal Christmas dinner. But the idea of not having an eating disorder honestly is so scary and I think it’s even more scary than the idea of living with one for the rest of my life. I’ve been thinking about it a lot over the last couple of days and I think there are a few main reasons which I’ll go into more detail about- the fact that I’ve had an ED for 20 years which is nearly two thirds of my life so the idea of change is really scary; the idea that the ED keeps me ‘safe’, less selfish, greedy or lazy; feeling ‘in control’, less chaotic and being able to manage emotions better; and the hardest one to admit- losing an ‘identity’ or something that is actually a big part of who you are.

The first and most obvious reason is that I’ve had an ED for most of my life and I can’t actually remember a time when I DIDN’T have a critical voice in my head telling me that I was fat, selfish, greedy or lazy and commenting on what I ate. Even before the idea of an eating disorder was first mentioned by a doctor when I was 13, I knew I was fat and that was why I was selfish, didn’t have any friends and messed things up all the time. The first time I remember consciously thinking that was when I was in Year 3 and tried to hold my stomach in for school photos, in Year 4 we had to weigh ourselves in a maths lesson to plot on a graph and I lied about my weight because I thought it was too high, in Year 5 I was embarrassed about having boobs and needing a crop top so I refused to wear one even though my chest hurt and rubbed against my school shirt, in Year 6 I made my mum buy an age 9-10 top for the leavers’ disco even though it stretched over my chest because I didn’t want to get age 11-12 when I wasn’t 12. I can’t remember ever eating food without feeling guilty about it although I must have when I was really little, and the idea of being able to eat without feeling anxious or guilty is weird and scary and doesn’t even really seem possible. And I’m scared of change which is another factor that makes the idea of recovery even more scary- the thought of change makes me feel shaky and like my stomach has dropped out, even though I know that you need to change to grow and move on. I think autism doesn’t help with this- with ASD, you get ‘stuck’ in patterns and behaviours that feel safe and make the world less chaotic, and it feels impossible to change. But I also know that is IS possible to change and that the world doesn’t end or even feel that different if you break it down and do it step by step. It’s not true that making the first step that is the hardest; they’re all equally hard but really, really worth it.

One of the biggest fears I have about ‘recovering’ from ED is the idea that without it, I’m fat, selfish, greedy and lazy and it’s the eating disorder that stops this from taking over. And it’s hard because it genuinely does- if I’m not eating much food, I can’t be greedy; if I’m exercising every day, I can’t be lazy; if my weight is low, I can’t be fat. But having an eating disorder DOES NOT make you any less selfish and actually makes it worse- you focus totally on yourself and what you are/aren’t eating, when you’re a low weight people worry about you which is incredibly selfish, and it’s hard to focus on other people when you’re constantly worrying about food or feeling guilty. But it’s also hard to fully believe that when you’ve got a ‘voice’ in your head telling you the opposite, the only way to stop being selfish is to lose weight and take up less space (physically and emotionally), the reason you’re lazy and greedy is because you’re fat and losing weight will make everything better… SO BLOODY HARD to work out what is real!!

The next reason, which links to the last one, is that the ED helps you to feel more in control and manage emotions better. This is hard to argue against because in a lot of ways, it does- restricting food and/or losing weight really does ‘blunt’ or even get rid of extreme emotions (at least until your body adapts and it doesn’t work any more), and for years this stopped me from wanting to even try to recover from ED. But after about 15 years of food restriction, it didn’t seem to work any more and I was experiencing extreme emotions, mood changes and obsessions at the same intensity even when I lost a lot of weight or severely restricted food intake again. But there’s still the voice in my head telling me that next time it will work, I just didn’t lose enough weight, I can get back in control of my emotions and especially obsessions without needing multiple drugs and that all I need to do is lose more weight. It’s so hard to fight against all the time and it’s exhausting. And I want it to be true so, so badly!! But rationally I know it’s not- I have BPD and the only way to actually (and consistently) manage and control extreme emotions and obsessions is to find the right balance of medication and be able to access psychological support and especially dialectical behaviour therapy which you can’t do if you’re not eating consistently.

The last reason is both the hardest to admit and the most complicated to explain- that not having an eating disorder is like losing a big part of your identity. I’ve had an ED for 20 years which is nearly two thirds of my life, and it’s unfortunately a big part of who I am which I’m really, really scared to lose. I’m not saying that I like having an eating disorder or that I want it- I don’t, and I genuinely hate the shitty part of my brain that tells me constantly how fat, lazy, greedy and selfish I am for even thinking about recovery but I am scared to ‘not’ have it if that makes sense. Which I’m sure it doesn’t so will try to explain! When I was first diagnosed with an eating disorder, I was really, really ashamed of it and didn’t want anyone to know. When I was in hospital, I only told one friend where I was and told my parents not to tell anyone although I’m guessing quite a few people knew by then and especially as I was in hospital over the next two years. I don’t like people associating me with having an eating disorder and outwardly, I really DON’T want it to be part of my identity.

But inwardly, it really, really is and I’m scared of losing that. I don’t think the voice will ever go away but I don’t listen to it as much any more and I definitely don’t act on it so I suppose outwardly, it does seem like I’m ‘recovered’. But does that mean I have to eat like everyone else? Do I need to eat fat? Do I have to eat different foods every day, eat ‘impulsively’, not stick to a meal plan and timings, have snacks and actually WANT to eat? Because all of those things terrify me, more than losing so much weight I need to go into hospital again or making my already rubbish bone density, teeth or heart rate worse. I don’t want to be ‘ill’ or be seen as having an eating disorder but at the same time, I’m scared of not having one because it means confronting all of the fears that have been a part of me for so long and changing so much of what makes me ‘safe’. But I want to be able to have a baby, be a ‘normal’ adult, experience sexual attraction and actually have an identity that is ‘me’ and not eating disordered or ‘ill’. And I know you can’t really have both, and that’s what I’m scared and confused about. And maybe this is all part of ‘recovery’, which I’m still not really sure what it actually is!

I know this blog post might read a bit negative and I honestly don’t want it to. I’m just a bit conflicted about the whole concept of recovery at the moment- lockdown threw everything into a bit of confusion and although I ‘saw’ a really, really helpful psychologist over lockdown who helped me get back into a regular meal plan and different foods each meal, I’m still feeling a bit overwhelmed by all of it especially as I’m taking a new medication which requires a minimum amount of calories to be absorbed! But I think the fact that I’m still trying SO BLOODY HARD and I really, really want to work it out and ‘get better’ means that I probably do want recovery, once I figure out what it actually is… Just so confusing and hard to get your head around!

Thoughts on social distancing and isolation

I’m so sorry I haven’t written in so long; I took the blog offline for a while because I got a bit paranoid about people reading it and became completely convinced people I knew were reading it even though I hadn’t shared it with them.  I’ve since changed the domain name and *hopefully* if anyone was, then they won’t be able to find it now but I don’t know how they would have found it anyway and tbh, it was probably just me being over-paranoid anyway!

SO…back to blogging.  I’ve really missed it; it’s one of the only ways I can try to actually make sense of my brain in a way that other people can understand and maybe relate to, and I miss that connection.  Which is especially true now we’re in the middle of social distancing and self isolation!  It’s a weird and disconcerting time for everyone and I’m swinging between being kind of relieved that for once it’s not just me feeling lonely, anxious and guilty all the time but then feeling really guilty for thinking that and just generally overwhelmed by the whole situation- again, like most of the world!

It’s weird that in one sense, not much has really changed- I was signed off work for two weeks before lockdown started anyway and it’s not like I had a particularly active social life (or even one at all).  But I had school and it was the hope of going back to school that had kept me going while I was signed off, and the idea of schools closing before I could go back felt really horrible and disorientating.  I know that a massive proportion of the country are feeling similar with schools closed and exams cancelled, teachers are feeling disorientated and kids are stuck without the structure of school, and for many Year 11s and Year 13s, they didn’t even get a chance to ‘leave’ school properly.  So in the context of that, how I’m feeling really doesn’t even compare to how a lot of people will be feeling at the moment but for me, it was the loss of hope and possibility of structure, purpose and social contact that really got to me the most.  And it’s still so, so hard to deal with.  I’ve set up a website of fun activities, quizzes and puzzles for kids off school to try to keep them entertained and I’m updating it every day but it still doesn’t feel ‘real’ or like there’s any actual point to it.  Trying to focus on it as a distraction and purpose but it’s hard when I don’t know if any kids are actually using it!  It’s Purple Jedi Activities if anyone’s interested ūüôā

It’s hard to work out what’s going on at the moment because before coronavirus took over the news and lockdown started, I was already having issues with medication, mood swings, anxiety and paranoia and the current situation really hasn’t helped.  It’s been going on for months- I started to feel rubbish again just before Christmas and it got progressively worse up till February when I kind of hit a massive low and just felt horrible, guilty and lonely all the time but so much that it hurt.  I had a couple of overdose attempts (which I’m rubbish at anyway- both times I panicked afterwards, tried to throw up, felt ill later and went to A+E) and have been having a lot of issues with mental health services recently because I “make people anxious” and it’s a “barrier to treatment” but I honestly don’t mean to and it’s making me feel so shit and trapped.  Long story; I ended up increasing medication to the point when I felt genuinely stoned and spun out all the time which wasn’t safe, was signed off work and have been trying to get the right balance of medication since then.  Currently on a mix of vortioxetine, quetiapine, pregabalin, lorazepam and zopiclone and trying to find the right amounts of each one so that I’m not too hyped, panicky or suicidal but can also function relatively OK day-to-day.  Really tough!!

But anyway, that’s just background :/ I think even without the Covid-19 situation, I’d be a bit all over the place atm but now it’s like the world has honestly gone nuts.  And for once it’s not just me!  It’s crazy to realise it’s a global issue and that the majority of the world is feeling scared, overwhelmed and anxious atm which is weirdly reassuring as well as a bit scary in itself.  For me, the hardest parts are the lack of structure which leads to feeling chaotic, ‘vertigo-y’ and like there’s no point, and the isolation which leads to intense loneliness and feeling cut off from everything.

One of the things I really struggle with is the idea that people will totally forget I exist if they don’t see me, and it’s so so hard not to keep contacting people I care about all the time to check.  And it’s SO BLOODY LONELY isolating on your own and not knowing when you can see a real person again.  I’m not a physical contact-type person but right now, I could really, really use a hug and I need it so much it actually hurts- my whole body is physically aching and tingling with anxiety and loneliness. And that must be a million times harder for people who are used to physical affection!

I realised recently that one of the main criteria for diagnosis of BPD is ‘fear of abandonment’ and being isolated on your own feeds into it- it really does feel like you’ve been abandoned by everyone and everything and I’m having to keep reminding myself that it’s a global situation and not just ‘me’- support groups stopped because they had to with social isolation not because they didn’t want me in the group, I’m not on the school rota v often because they’re limiting staff in school not because they don’t want me in, people aren’t messaging back because they’re overwhelmed and scared like everyone atm or busy with other things not because they hate me, social distancing was not introduced because I’m too intense and people need a break from me! I know it sounds over-dramatic, self-centred and ridiculous (which it is) and I know that rationally but it feeds into the main idea that people just don’t want you around which still really hurts and makes you feel rubbish.

One of the other criteria for BPD is ‘chronic feelings of emptiness’ which I’ve always referred to as ‘vertigo’ and it’s so, so intense at the moment without any real purpose or connection.  For me, that’s the part that leads to pretty much constant suicidal thoughts because there really is no point and I’m so scared people I’m close to will forget about me, and it’s so hard to manage.  But I can’t act on any of it atm anyway because I don’t want to put any extra pressure on the NHS by having to go to A+E so feeling really trapped and rubbish.  Which I’m trying to channel into more positive distraction but is leading to a lot of negative behaviours which I hate but tbh if it means I’m not overdosing or ending up in A+E then it’s not the end of the world.

The other overwhelming feeling atm is guilt.  Which tbh isn’t just atm- I feel guilty A LOT of the time anyway but it’s constant now and literally taking over most other feelings.  Part of it is justified- I know I can be too intense and needy and although I really try to manage it and not keep contacting people, I am still ‘too much’ when I talk to people because I honestly am feeling so horrible so much of the time and it’s hard not to let that show.  But I keep apologising and trying to let people have the choice if they let me contact them or not, but I still feel shit for being like this in the first place.  I really am trying to change it- I’m doing a lot of online courses in Food and Nutrition, Health and Social Care and some self-help courses for BPD which challenge viewpoints and behaviours but it seems to be taking a really long time to see any change at all which is frustrating and I just wanted to be a nicer, less draining person.  But at least one positive to social distancing is that people don’t have to put up with me in person any more!

One of the other issues I’m finding hard (and links to guilt) is feeling like everything is my fault.  This is something I’m challenging a lot atm- I know rationally that I am not all-powerful and I definitely didn’t start coronavirus or create the crisis that the world is in at the moment, but I still feel really, really guilty that people are dying all over the world and it feels like I should be doing more to stop it.  I’ve signed up for NHS volunteers and for social care volunteering but haven’t heard back yet, and I’m aware I’m a drain on NHS resources even without Covid-19 pressure which makes me feel really guilty.  I’ve been in touch with CMHT, ED services and the crisis team a lot over the last few weeks because I genuinely don’t feel safe in the house on my own, partly because of intense suicidal thoughts pretty much every night, partly because of medications making me feel stoned or spun out and partly because I’m still getting occasional extreme mood swings which can make me really impulsive.  But they can’t do much atm- they’re not admitting any new inpatients because of the pandemic and all they can really suggest is to keep a mood diary, have a crisis plan and take lorazepam which I’m doing but it still doesn’t feel safe a lot of the time.  But I’m still trying!!

The last issue I’m going to talk about here is the idea of feeling chaotic, out of control and scared which for me, is a big trigger for eating disordered behaviour which I’m trying SO HARD not to fall back into atm.  It’s taken 20 years and some v direct honesty from a couple of friends to get into a ‘healthy’ eating routine and I really, really don’t want to lose that.  So I’ve literally made a timetable to structure the day around a ‘school day’ with set mealtimes which I have to stick to.  And it feels so much safer because it’s not my ‘choice’ and apart from a couple of really horrible, chaotic days, I’ve pretty much managed to stick to it.  Will share it here in case anyone else finds it useful ūüôā

 

But even though the world is chaos and scary, there have weirdly been some positive effects!  Which I’m trying to focus on and see as proof that things can change…

  1. Thanks to necessity for medical appointments, helplines and crisis calls, I can actually make and receive phone calls now without getting panicky!  Which is a HUGE thing for me.
  2. I have several friends who are amazing and some of whom put up with sometimes ridiculous texts or calls.  Several being a BIG change because before I’ve only managed to keep one or two friends at a time and now I have a few!  And I’m really trying to believe they won’t forget I exist just because I haven’t contacted them in a few days…
  3. Social media is not all paranoia and anxiety and with only close friends, can be an absolute lifeline.
  4. I can go to the supermarket only twice a week, buy more food at once without being convinced everyone will think I’m a greedy, lazy bitch and actually keep the food in the house without bingeing on all of it!!  Which, as someone who used to only be able to buy a day’s food at once, is a BIG change.  Mostly helped by my equally intense fear of germs meaning that I’m genuinely scared to go to the supermarket but I’m still taking it as a positive!
  5. I now wash my hands in a normalish way.  Which again is a big thing- I used to have to use 2-4 pumps of handwash and sometimes 2-4 more depending on if they ‘count’, and careful not to accidentally hit 13 overall so sometimes even more but now, thanks to restrictions on how much handwash you can buy, it’s 2 pumps ONLY and they both necessarily count.  And it’s amazing how much less anxiety I have now about washing my hands!
  6. I bought a weighted blanket to help with anxiety and needing a physical ‘hug’, and I’ve never slept so deeply in my life.  OK, it’s still not for very long and not always at night but it’s seriously amazing!
  7. Focussing on Jedi living is actually a lifesaver atm.  I won’t go into it too much now because I’m planning a whole post on it later on but there’s something really grounding about connecting with a Force greater than yourself and trying to really focus on quieting your mind and letting go of attachments and fear.  I know it might sound a bit weird but it honestly does really help.
  8. I have never spoken to my little cousins on FaceTime so much in my life (or ever, in fact)!  They’re all off school and bored atm and it’s so nice to connect with them, watch them play lego/do crafts/just hang out.  Living in England while they’re in Scotland means that sometimes I miss out on my little cousins growing up and it’s so nice to connect with them properly now.  Feels like I’m actually in Scotland with them!

Anyway, this post is a lot longer than I’d intended so will leave it here ūüôā REALLY hope everyone is managing OK and sending lots of hugs to anyone else self isolating on their own.  It really is hard and can feel like it’s never going to end but IT WILL and reach out to as many people as you can ‚̧

What I learned from running 10 marathons in 10 days

Sorry I didn’t post last night; was completely exhausted both physically and emotionally but finished the 10 in 10!! ¬†Honestly one of the hardest things I have ever done- I was just about prepared for it physically but really wasn’t ready for the mental challenge of getting to the startline every day for another marathon, keeping going when you’re too hot, everything hurts and you’re exhausted or (especially) the emotional overload every night after the race and occasionally during it. ¬†But DONE ūüėÄ probably not something I’ll ever attempt again but so glad I did it, really needed the challenge and good to have achieved at least one positive thing this summer.

The emotional side of the running was definitely the hardest bit. ¬†Usually I run ultras where you have 24+ hours of just zoning out and running at your own pace which is totally different to running marathons. ¬†Plus there are so many more PEOPLE which I know is good and motivating but sometimes I really just wanted to be on my own which was impossible on a lapped marathon. ¬†The people were amazing though- everyone was so lovely and encouraging and without them, I probably wouldn’t have got past day two but it’s definitely a different type of running to what I’m used to. ¬†There were a few days when I genuinely couldn’t stop crying and it’s hard when there are people all around you so spent a lot of time crying in bushes or anywhere people couldn’t see, and I hadn’t realised how emotional marathon running can be. ¬†I think it’s because you’re having to push physically all the time to meet the cut off times and you can’t zone out in the same way as during ultras so you’ve got too much thinking time and my brain was going to some pretty horrible places without enough distraction. ¬†Definitely not the kind of running I’d want to keep doing but definitely good for a challenge!

The other big challenge for me was being away for ten days on my own and managing the time in between marathons. ¬†It was really, really hard and had some pretty massive mood crashes between the runs but I kept reminding myself that it was still better than how I’ve been feeling at home recently and it was a massive challenge. ¬†I actually made some (for me) pretty sensible decisions- when I was having a really bad night and constant suicidal thoughts, I called a mental health helpline who contacted the psychiatrist I’m seeing at the moment so she called me, and I gave my medication to a running friend to look after so I couldn’t overdose on it which is definitely more sensible than I’d usually be. ¬†But I really, really wanted to complete the 10 in 10 which would be pretty impossible if I did anything ridiculous or stupid and my whole focus last week was getting through the challenge.

The other unexpected challenge was the heat- it was bloody hot especially over the last few days!! ¬†Running a dry, exposed course in 33 degree heat with no breeze is bloody tough and definitely made the challenge harder. ¬†Even though I was dipping my cap in cold water every lap, drinking as much water and electrolytes as I could and wearing factor 50 kids suncream, I was massively overheated all the time which really wasn’t fun. ¬†I’ve lost count of the amount of times I ran into the petrol station near the course to buy some diet Coke and even ate a ridiculous amount of ice poles and ice lollies which I’d never normally eat because of the sugar and additives but it was so, so needed and was desperate for any way to cool down. ¬†Never want to see an ice lolly again EVER and feeling a bit shit about how many I’ve eaten over the last ten days but it did seem to help stop the path from spinning so much.

Anyway, back to reality today :/ still on a bit of a high and trying to make it last as long as possible before the inevitable mood crash that people keep warning me about. ¬†So I’m trying to get as much washing, blog writing and productiveness done as a I can now! ¬†Felt a bit weird this morning not going to the Cyclopark for another run but definitely nice not to have to force down porridge with cornflakes and cereal bars when I’m already feeling sick or cover myself in green gunky suncream (because I hate white things) and feel yucky and greasy all day. ¬†But it is a bit lonely without the amazingness of awesome SVN people and how bloody incredible and supportive you all are- THANK YOU so so much!!

Been a bit of an epic and exhausting week, and actually learned some stuff! ¬†SO…

  1. The human body is AMAZING and is capable of incredible things.  Especially if you feed it.
  2. David Bowie is a lifesaver and playing Rock ‘n’ Roll Suicide will make you feel alive even when you really don’t feel like it physically or mentally.
  3. Use the people around you- they are amazing. ¬†I’ve met so many awesome and inspiring people this week and thank you all so much!
  4. Ice lollies are GOOD and can save your race.
  5. Just keep moving. ¬†Even if you’re walking, you’re still getting closer to the finish line.
  6. It is possible to run, cry and breathe all at the same time and is actually kind of therapeutic.
  7. Sleep can completely reset your mind and is really, really important.  Even if you need Zopiclone to get it!
  8. You are capable of way, way more than you think you are and half the challenge is just starting it.
  9. Food is fuel and without it, you can’t even get past the first lap.
  10. I like icing even if I don’t like cake and it’s a bloody good energy boost!
  11. Whole albums are better than playlists because you actually feel like you’ve accomplished something when you run through a whole sequence of albums.
  12. Don’t listen to emotional audiobooks while running; you will cry uncontrollably.
  13. Listen to your body.  If you need to slow down, then slow down and enjoy the scenery.  Even the bloody rabbit bridge for the 160th time!!  Pushing through pain is never a good idea.
  14. Exhaustion is more mental than physical- your body can do pretty much anything, it’s your brain you need to convince.
  15. Mental and emotional exhaustion are two separate things. ¬†You can push through mental exhaustion and feel accomplished by the end; never try to force through emotional exhaustion because you’ll spend the evening feeling rubbish, overwhelmed and not safe.
  16. A text message from a friend can literally save your day.
  17. Running is a bubble away from real life where you’re not really alive or dead and neither really matters. ¬†It’s like being in an alternate universe where all that matters is that particular lap and that’s a pretty amazing escape.
  18. I am definitely more of an ultra person than a marathon runner!  But it is pretty cool to have ten rainbow coloured medals.
  19. Your worth isn’t defined by how many marathons you’ve run or how far you can push yourself. ¬†Everyone has their own individual limits and that’s OK; it’s working within those limits and feeling OK about yourself that matters.
  20. People are amazing. ¬†Even if you’re feeling shit and don’t really want to interact with anyone, they’re still there being encouraging and so lovely and it’s amazing watching people achieve incredible things.

Just want to say THANK YOU so so much to everyone for being so amazing and supportive this week, both in person and online and I really, really appreciate it. ¬†Genuinely didn’t think I’d manage even one marathon and I probably wouldn’t have without the support. ¬†Been a v v surreal and exhausting week physically, mentally and emotionally but also ironically one of the most ‘sane’ weeks I’ve had in months and really ¬†want to channel that!

10 in 10 Day Five- halfway through!!

Five marathons down and halfway through!! ¬†Today was a bit of a weird one- after yesterday, I didn’t sleep brilliantly last night and wasn’t in a great mood when I woke up but I noticed on Facebook that it was a purple medal day and purple’s my favourite colour so made an effort to wear all purple (not too difficult given that 90% of my stuff is purple anyway plus I have purple hair and nails!) which definitely helped put me in a more positive frame of mind. ¬†Wish everything was that simple!

I hadn’t had much to eat last night because of feeling rubbish and I was genuinely hungry this morning so I added cornflakes to my porridge (weird I know but it doesn’t seem as much as having extra porridge) and had some hot soya milk as well as coffee. ¬†I actually felt reasonably with it at the start of the run which was nice considering how horrible the last two days have been and once the run started, I seemed to have a surprising amount of energy.

The first couple of laps went pretty quickly; I was listening to Pink Floyd’s Dark Side of the Moon and The Division Bell, and the extra food for breakfast really did seem to have helped. ¬†By lap three, my mood had started to drop again and was having a lot of pretty unhelpful thoughts about eating extra and not needing it, not trying hard enough etc but I kept running and tried to build up enough time so that I could ease off in the second half. ¬†I stuck to the cereal bar strategy again which *touch wood* seems to be working OK, and ran most of the race pretty much on autopilot.

The weirdest thing was that I didn’t really feel sore or overly exhausted which is strange considering it’s day five and days three and four were really tough. ¬†Physically, I felt the best I have done all week although mentally my brain was all over the place and that was harder to manage. ¬†By lap six, I’d switched to Harry Potter audiobooks which is my go-to brain numbing strategy and that really seemed to help. ¬†I walked most of the last two laps but I’d got enough time to be able to, and I was surprised at how the run seemed relatively OK compared to the last couple of days. ¬†Big relief and really hoping it lasts!!

It was really, really hot and I realised after the run how dehydrated I must have been- mega headache and felt so thirsty even though I’d been drinking squash all day so I walked to Morrisons and got some diet Irn Bru which was the most amazing thing ever!! Had a salad and cooked chicken for tea which didn’t seem like too much for once (I hate admitting it but I am actually starting to get hungry) and some melon which was equally amazing. ¬†Am absolutely exhausted now though and a bit over-emotional so planning an early night and hopefully sleep… ¬†Five down, five to go!

Day Three of the 10 in 10

Today was TOUGH. ¬†Managed another marathon but I’m really not sure how many more I’m going to be able to do. ¬†Weirdly it wasn’t the running itself that was the problem though- I woke up feeling rubbish and tired (no idea why; I’d slept OK) and found it really hard just to get my running stuff on, eat porridge and even get to the Cyclopark. ¬†It was like I had no motivation at all and really couldn’t be bothered which was weird because it was sunny and everyone was being so lovely and supportive.

I can’t remember much of the start of the run but it must have gone OK, the sun was shining and there was a breeze so not too hot, and I was listening to a mix of Bowie live music. ¬†On either the first or second lap (can’t remember!), I caught up with the guy I’ve run with on and off for the last few days and ran the next couple of laps with him which was really helpful motivation-wise and to keep pace up so that I didn’t have to stress for the last half of the marathon. ¬†After lap four, I was really starting to struggle so he went ahead and I plugged back into Bowie in an attempt to keep moving.

The path kept spinning and I felt like I was literally forcing my body to move which wasn’t a lot of fun. ¬†I was in a bit of a negative mindset- really not sure the runs are worth the extra stress of fuelling and trying to keep distracted from brain shit, but I kept reminding myself that it was definitely better than feeling rubbish at home which would be the alternative and at least while I was running, I was doing something relatively positive even if it didn’t feel like it. ¬†I’m finding the food side of running really difficult though :/ a few people pointed out today that a few grapes each lap aren’t enough to fuel a marathon but I’d given up with the cereal bar strategy for today because I was feeling so shit about it, and it’s bloody hard having to actually eat real food every evening to fuel for the next day. ¬†Feeling really rubbish about the whole thing atm and no idea how I’m going to manage another week of it. ¬†Total mindfuck!

During lap seven, a lovely woman I’ve run with before caught up with me and it really helped chatting to her to distract from brain crap and just to catch up. ¬†The end of the lap was a bit eventful- sudden rain and hailstorm out of nowhere and got absolutely soaked and bloody freezing!! ¬†I was v v close to pulling out at the end of that lap because I was so cold but one of my awesome running friends who’d finished lent me his waterproof and went out again for the last lap- thanks to people who literally forced me back out!! ¬†Thankfully the hail eased off and the sun came back out so had dried off a bit by the end of the run.

I’m still feeling a bit weird and rubbish about the whole thing :/ I know I should be happy to have run another marathon (and I’m sure on one level I am) and it’s so nice to people to keep being so encouraging but I’m also feeling really horrible and shit about everything at the same time which really isn’t helping. ¬†I know I can’t not eat and expect to be able to run marathons every day but it’s so hard to know what’s the right amount and what foods to eat. ¬†The woman I ran with today gave me some dextrose tablets to try tomorrow (only 12 calories each and they have electrolytes in them too) so will give that a go if I start to feel dizzy or spaced out, and keep going with porridge in the morning and something for tea.

Today I bought a salad from Morrisons for tea and added cooked chicken to it for protein which I think is OK, but the really horrible thing about eating more regularly is that you start to get hungry and I’m already finding it hard not to eat all my cereal bars in one go! ¬†Feeling really greedy and yucky about it (don’t usually get hungry and it’s a headfuck feeling) but I know that marathons need fuel and protein helps to repair muscles. ¬†Just wish it didn’t also feel like I’m going to have put on about ten stone by next week! ¬†So bloody confusing but determined to keep trying with it…

Positive psychiatrist appointments actually exist!!

This is a bit of a random post because it’s not based around any particular ‘theme’ or event (although to be honest, not many of my recent posts have been!) but thought it was worth a blog post anyway because for me, it’s pretty massively significant. On Monday, I had an assessment appointment with a new psychiatrist which I was really nervous about and not expecting much from it (usually I just get told that because of autism, they can’t help). Amazingly, it was a weirdly positive appointment!! She was very direct and honest which I need, and ridiculously thorough to the point that the appointment took nearly two hours and she’s making another one to finish it off.

The most amazing thing was that she actually didn’t just write everything off as autism- she thinks that personality traits (specifically ’emotionally unstable personality disorder’ AKA borderline personality disorder) are more of an issue at the moment and wants me to read up about it more before the next appointment. AND she’s willing to actually work with me on it!! WOW. Have been reading about it and literally it’s like someone read my brain. So weird and amazing to read about other people experiencing the same sort of thing and to have an actual, real ‘reason’ for feeling the way I do.

This book in particular is amazing:

It’s a really detailed and well-written ‘guide’ to BPD and writes in detail about all the different symptoms, thought processes and behaviours without judging or sounding overly negative or stigmatised about it which a lot of the articles I’ve read have been. It actually made me cry to read it because it made so much bloody sense. Even obsessions, being too ‘intense’ and issues with keeping friendships! I could literally quote half the book in this post but am going to focus on a few pages that I found really, really useful.

This page is incredible. It sort of links to something a friend said to me a while ago that you can’t ‘get rid’ of obsessions or extreme emotions, you just need to learn to manage them and this book explains it in such an amazingly positive way. And it even says that learning to manage the intense feelings will eventually mean that they are less intense which would be an absolute miracle!! Having had 19 years of feeling like I’m never going to be able to deal with it, it really seems like an unreachable goal but definitely one I’m willing to work bloody hard to achieve. Honestly, if I ever manage to be able to deal with intense feelings and obsessions, I think my life would be relatively good and I’d be ‘normal'(ish). New life goal!!

There’s even an actual link to eating disorders in the book! And the really amazing thing about it is that I can totally relate to how it links BPD and ED, much more than I can relate to most ED-specific books or articles. For me, it’s always been about managing extreme emotions and obsessions- low enough weights actually stop them completely which was why I was desperate as a teenager to lose weight. The main reason I binge isn’t for the actual ‘binge’ part; it’s because throwing up helps to shift the intense vertigo-y vacuum inside my stomach. Apart from exercise, that’s the only thing that actually helps with it and gives me a sense of relative calm.

Similar to above, restricting your diet can make you feel calmer and more in control. I can relate absolutely to this page and although i know it’s stereotypical ‘ED’ to be about control, mine has always been more about not eating certain foods or food groups than the weight itself. That came later and only because I realised it stopped intense feelings and obsessions.

The hardest part of the whole autism/BPD mix for me is making, keeping and managing social relationships. I lose A LOT of friends from being too ‘intense’ and I’m constantly scared that people are annoyed or upset with me, find me too annoying, boring or clingy, or don’t want to be friends with me any more. It’s bloody hard not to keep texting friends to check and I used to do that a lot, which would lead to friends asking me not to contact them any more. Now, I’m a lot more aware of it and it really is a relief to read that other people experience the exact same thing and I’m not just a paranoid, intense, horrible person. I can also relate to wanting to just give up on friendships completely but the intense loneliness is too hard to deal with. Makes you feel like you’re trapped in a cycle of paranoia and loneliness that you can’t escape from. But this book says that this is one of the symptoms which you can learn to manage through DBT and awareness which seems too good to be true but am DEFINITELY willing to try…

The last page I’m going to talk about is about self harm. When I read this, I had to re-read it because it described exactly the thoughts and urges I experience on a regular basis. It honestly is an intense self-directed anger and hatred that makes you want to literally scrape your skin off and rip out your flesh which gets channelled into cutting or hitting depending on the situation. When it’s overly intense, it can get to the point where you want to disappear or not exist which can lead to (for me anyway) overdose of medication but I always end up throwing it up ten minutes later because I don’t actually want to ‘die’, just not exist or more specifically, for the intense feelings to not exist. It’s like wanting to kill a very specific part of you (I’ve been calling her ‘borderline bitch’) which I hate and would do anything to get rid of.

The other really positive aspect of the appointment is that I’m changing medication!! Coming of quetiapine which has caused horrible side effects and increasing aripiprazole to make up for it. Really, really hoping it helps!! Anyway, would DEFINITELY recommend this book to anyone who has, knows anyone who has or is interested in BPD/EUPD- it’s an incredible book ūüôā

Yet another apology post!

Hi guys, just another apology post for not writing much recently! Not been feeling great and been a bit dissociated a lot of the time which hasn’t helped ūüė¶ back to work next week though which I’m REALLY hoping will help…

Got a few blog posts which I’m halfway through writing though so will hopefully post properly again soon. I attempted a run across Scotland which was really tough and had to withdraw partway through so trying to write about that, and been doing a lot of thinking about ED, recovery and what it actually is (kind of following from the post I wrote last year¬†Thoughts about ED recovery¬†but probably more confused by now!) so also trying to make enough sense of it to write about that too. ¬†Fingers crossed I‚Äôll have a proper post written soon and thanks so much to anyone still reading this blog!

Why I really need to make changes :/

Sorry I haven’t blogged in over a week, haven’t been feeling great and not really had anything useful to blog about. ¬†I did manage the soup last week though which was a massive positive! ¬†Took a LOT of psyching up to; there were several attempts where I’d planned to have it but talked myself out of it (I’m too tired, not done enough exercise, got too much going on, don’t need it etc) but I’d promised I’d do it once in a seven day period and last Wednesday was the seventh day so I had to. ¬†The pressure really helped- it meant that it wasn’t a ‘choice’ and I had to do it which took away a lot of the guilt and anxiety about it although I still felt really nervous and ‘wrong’ because it wasn’t what I’d usually have and I didn’t really need it. ¬†But I did it though and went straight out for a walk afterwards listening to Harry Potter to distract, and it wasn’t anywhere near as bad as I’d thought it would be. ¬†I was really anxious afterwards that I’d suddenly gain lots of weight but weirdly I didn’t which was a massive relief! ¬†Tomorrow will be another week so will try it again tomorrow night, *touch wood* it will go OK again…

Things have been a bit rubbish since then though and haven’t managed to do anything else particularly positive which is a bit frustrating. ¬†Had a bit of a mood crash towards the end of last week which lasted into the weekend so spent most of Saturday and Sunday on the cross trainer or bingeing which wasn’t ideal (although I went to an amazing Roger Waters concert on Saturday night so wasn’t all bad) and still feeling overly emotional and rubbish, really hoping it’ll lift soon. ¬†I think it’s a build up of lots of different things- I work in a school and it’s end of the school year which is always hard because of changing timetables and not knowing exactly what’s going on, and kids have left after exams which is also tough because I get attached to kids I work closely with and takes a while to get used to new ones.

We’ve also been studying Of Mice And Men in one of the English classes I work in which is my least favourite book and I find really difficult to read, and it’s been affecting my moods a lot recently. ¬†It makes me feel really guilty, upset and horrible because of Lennie and how he accidentally hurts things without meaning to and it’s NOT HIS FAULT, and he’s actually trying to do what he thinks is the right thing all the time. ¬†The ending is HORRIBLE and so, so hard to read (we had to watch the ending of the film today which I hadn’t seen because the teacher last year let me go and work in another room when the kids were watching it, and it make me so shaky and I couldn’t help crying although I managed to mostly keep in in and thankfully only one boy I was working with noticed and didn’t make fun of me). ¬†It was actually harder to read this year than last year because I was already feeling a bit emotionally overloaded, and it triggered a lot of not-very-helpful thoughts about how hard it is not being able to manage your own emotions and how sometimes it really feels like it would be a good thing to have a friend like George in the last scene of the book (then I feel really guilty for thinking that and the whole cycle starts again). ¬†Not nice!! ¬†But thank God it’s a whole year till I need to read or study it again…

I think one of the massive downsides to trying to challenge your thoughts is that you’re suddenly more aware of everything your brain is telling you and that you’d usually just accept, and it makes the brain arguments so much more intense. ¬†This morning was a really good example of that and it was EXHAUSTING because I was trying to rationalise too many irrational thoughts at the same time but I did actually manage to successfully challenge one of them in the end! ¬†It went basically like this (‘B’ stands for brain/bitch in my head- bold is where I actually managed to challenge it):

*4am, waking up*

B: Get up, time for coffee and go for a run.

Me: I’m tired, I only slept an hour and a half last night and I’ve got a full day of school.

B: Stop being so bloody lazy and get up, you need to run to use up the extra energy from last night because you didn’t go for a walk after tea.

*gets up, immediately feels dizzy and goes back to bed*

*5.30am, waking up again*

B: YOU FAT LAZY BITCH, GET OUT OF BED.

Me: But I’m still tired, I really need to sleep.

B: STOP BEING SO BLOODY LAZY AND GET UP.

*gets up, goes downstairs feeling like a zombie, steps on scales.  Have put on a pound overnight which definitely wakes me up*

B: See how fat and disgusting you are?  Have coffee and get out running NOW.

Me: *feeling like shit, makes coffee and drinks it. ¬†By this point it’s 6am*

B: Stop being so fucking lazy and get ready to run.

Me: I’m still tired, I just want to hide on the beanbag and sleep.

B: Stop putting it off and just fucking RUN.

Me: It’s nearly quarter past six, I won’t have time to run properly anyway.

B: A short run is better than no run you lazy bitch.  Just bloody go.

Me: But I won’t have run enough to earn soya milk and I’ll feel dizzy if I go to school without it.

B: That’s your body playing tricks on you to make you eat- override it, you’re in control. ¬†Just fucking run.

Me: I was planning to go on the cross trainer later…

B: And you’ll come up with a million excuses- it’s too hot, I’m too tired, I’ve been at after school club running after kids… ¬†Stop being so fucking fat and lazy.

Me: But even if I do run, I won’t have time to shower afterwards and I need to get to work.

B: Who cares? ¬†It’s not like you sweat anyway you lazy bitch- you’re not even working hard enough for that. ¬†Just RUN.

*puts on trainers, goes for a run. ¬†Runs further than I thought thanks to constant ‘motivation’ from bitch in my head*

B: See, that wasn’t so hard was it?

Me: But now I feel really weird and dizzy, and I’ve got ten hours of work to get through.

B: But you ran which is the main thing and you can go on the cross trainer later.  That should be enough to balance it out.

Me: I’m dizzy and shaky, I need food.

B: No you don’t you stupid bitch. ¬†It’s your body messing with you, ignore it.

Me: No, I need to eat something, I need the energy for work.

B: No you don’t- stop being so fucking greedy. ¬†Just go to work.

Me: No, I didn’t eat enough on Friday and people at work noticed that I was dizzy and disorientated, and I can feel it happening again. ¬†I’m going to have some soya milk.

B: YOU DON’T NEED IT YOU FAT BITCH. ¬†You only ran four miles, that’s nothing and you haven’t even been on the cross trainer yet.

Me: But the soya milk will keep my blood sugars more stable then I’ll have more energy for the cross trainer.

B: JUST GO TO BLOODY WORK. ¬†You don’t need anything.

*ignores it and has soya milk, then goes to work*

That was bloody HARD!! ¬†Normally, I’d run further than I did this morning and wouldn’t even consider having the soya milk but last week, I felt really ill a couple of days at work and a few people I work with noticed which I REALLY don’t want, and I know it was low blood sugar levels (I was shaky and zoned out, parts of my body felt disjointed and not real, and I was really itchy all over). ¬†I did go on the cross trainer after work and felt ill again afterwards but luckily I had tea pretty much straight away and although I’m still a bit shaky and zoned out now, it’s a lot better than it was. ¬†But it’s things like that that are making me realise that I really do need to learn to manage it properly and I really, really want to be able to. ¬†I hate the constant tiredness and feeling rubbish, and it’s exhausting having to constantly argue with your brain.

I’m REALLY hoping that the more I challenge it, the easier it’ll be but it really doesn’t feel like it at the moment. ¬†It’s hard as well because of feeling generally rubbish and not very motivated, and it feels a lot like ‘I’m never going to be able to change or get rid of it so what’s the point in trying?’ but I also really, really don’t want to lose my job or have to go inpatient again so I know I need to do something. ¬†Feeling so trapped and horrible atm! ¬†But also determined to start feeling more positive about it…

Trying to make sense of my brain…again!

This is a sort of follow up post to yesterday’s¬†Back to more regular blogging!¬†and I’m going to focus more on food/weight-related issues because that’s basically what I’m trying to work on properly at the moment. ¬†Or at least that’s the aim; the whole idea is absolutely terrifying me and I’m not totally sure how or what exactly I’m trying to change or achieve, so I’m sort of trying to make sense of that too! ¬†I’ve been re-reading older blog posts about similar things (especially¬†21/05/07: probably the most significant day of my life. ¬†Reflections a decade on‚Ķ¬†which I wrote ten years to the day after I was last inpatient and I’m still feeling very similar to how I did then) which is definitely helpful to try to formulate some idea of how I’m feeling but my brain is pretty much constant fuzz and confusion all the time at the moment so it’s hard to make any sort of real sense of it. ¬†But blogging is a good way to start!

Another previous post which was useful to re-read is¬†ED relapse warning signs. ¬†I wrote it about a year and a half ago based on a list of yellow/amber/red warning signs of possible ED relapse that I’d written with a psychologist I used to see as an inpatient way back in 2006, and it scared me a bit because I’m starting to show a lot of the signs again which is a definite motivator to try to address it now before it gets too intense. ¬†It’s always hard trying to figure out what ‘relapse’ actually is because I never really fully recovered in the first place but I REALLY don’t want to get back to inpatient point again and even though it would still be a long way off, I also don’t want to lose my job or even risk getting properly ‘ill’ again so I’m trying to use that as a reason to do something about it before it gets to that point. ¬†It’s hard though because although I’m aware things must have changed recently (people have commented on it and I’m definitely more food/weight fixated than I have been in a while), my weight isn’t particularly low compared to how it has been and even though I’m feeling tired and zoned out a lot of the time, I’m not physically ‘ill’ or passing out so it kind of feels like I’m making a big deal out of nothing and just being selfish. ¬†So hard to work it out!

I know I’ve already said it but have got total fuzz brain at the moment and I really need to try to sort it out enough to know what I’m trying to actually do. ¬†I’ve got the bitch in my head pretty much constantly reminding me that I’m just being selfish, I’m a lazy greedy bitch and I just need to get on with it and try not to let people notice but that’s bloody exhausting because the rules keep changing and I’m having to be active and walking ALL THE TIME especially if I’ve binged the night before or not managed to get the right amount of exercise in earlier on in the day. ¬†But it’s doubly hard to think about doing anything else because she starts up more aggressively and it’s really, really hard to ignore or think of anything else. ¬†But I REALLY don’t want to end up inpatient again and I know rationally that that is a possibility however far off, and I also know that the closer you get to that point, the harder it is to change anything so I really do want to do something now to stop that from happening.

It’s really hard when it genuinely doesn’t seem like a big problem at the moment though and even small changes seem really, really scary. ¬†I know my eating patterns aren’t ideal but they never really have been (except briefly just after I was inpatient) and it’s only really since coming off medication that it’s been a more obvious issue because my weight went down a bit. ¬†But it feels so much safer the way it is- obsessions are less intense, it’s easier to rationalise feeling fat/lazy/selfish, I’m constantly a bit zoned out so things don’t get to me as much (although having said that, I had three meltdowns over the weekend including one where I was crying, pulling my hair out and banging my head off the floor so maybe that’s not *totally* accurate), and things seem more manageable than the intense obsessions and mood swings I’d been experiencing. ¬†But at the same time, I’m also not sleeping properly, tired all the time, finding it hard to run properly (and hating it), not really enjoying anything and feeling like I should be exercising all the time even if I’m exhausted which also isn’t great.

A friend who I really trust brought it up last week and said that I really need to make some changes before someone at work says something and so I don’t get to inpatient point again, and she’s not the sort of person who would say things she doesn’t mean. ¬†She’s been really direct and honest about it which really helps to put things into perspective but as soon as I’m on my own and my brain starts up, it gets confusing and overwhelming again and I still have no idea how I feel about it except that it’s bloody scary and I feel stuck and overwhelmed. ¬†The directness really does help though and she’s set me a challenge of swapping low calorie soup for regular soup one night this week which I know doesn’t sound like much but every time I’ve tried so far, it’s sent my brain into overload- didn’t realise how confusing soup could be but after spending nearly 40 minutes in the supermarket trying to work out which one to get.

It was really hard because I ‘need’ the right amount of protein per 100g as well as trying to work out what an equivalent to the soup I’d usually get would be without ‘cheating’ and getting the lowest calorie regular soup which I couldn’t get anyway because it didn’t have enough protein; regular soup cans say they serve two which would mean one serving is less than the low calorie soup I usually get which would defeat the point and be cheating (that caused a ridiculous amount of brain arguing!) and also need it to be an easyish number of calories in the can to work out in a daily amount. ¬†I did finally manage to get a can of soup though which had the ‘right’ amount of protein, counted towards 5 a day, also had a good amount of fibre and was (scarily) almost twice the amount of calories of the soup I usually have without being too much volume which would make me feel too full and risk bingeing straight after, which was a definite achievement! ¬†Haven’t managed to have it yet though :/ I meant to try it over the weekend but had a really stressful few days where nothing really went to plan so going to have it for tea tomorrow night after work. ¬†Really, really nervous but it helps that it’s not *my* choice if that makes sense- it was my friend’s idea and I said I’d try it, and I’m trying really hard to think of it as a ‘rule’ I’ve got to stick to instead of a choice. ¬†Which I know sounds ridiculous but it’s worth a try- every time I’ve tried to make the decisions on my own, I’ve never managed to stick to it and I really do want to make it work this time.

Another ‘rule’ I’ve set for myself is that I need to be doing something creative from 9pm every night- either blogging, drawing, colouring or writing, and I’m really going to try to stick to that too. ¬†Lots of reasons but mainly because it puts a ‘limit’ on the amount of exercise I can do in the evenings- longer evenings has meant a ridiculous amount of walking (or sometimes running) which really isn’t helping and is exhausting, and also because I’ve totally got out of the habit of doing anything creative which isn’t great because creative stuff is a really good way to ‘escape’ my brain for a while and to try to channel it more constructively. ¬†So hoping to stick to that too! ¬†Will see how it goes anyway…

Back to more regular blogging!

I have been ridiculously bad at blogging regularly recently (and yes, I’m aware that recently is pretty much over the last year or so!) and I’m really sorry about that. ¬†It’s been a combination of feeling rubbish, not motivated or focussed and not really having anything interesting other than running to write about, but I’m also aware that all of that is just excuses and the real reason is that I’ve been avoiding actually thinking about anything other than any given day (or usually hour) at a time and haven’t wanted to acknowledge properly what’s been going on in my head which doesn’t even make proper sense anyway. ¬†But I’ve got a million things I should really be trying to focus on and blogging is a good way of trying to make sense of it and having some sort of accountability so I’m going to make a massive effort to stick to blogging more regularly again…

Don’t want to go into too much detail about the last few months and it’s basically an extension of topics I’ve blogged about a lot before anyway. ¬†Short version: obsessions and moods got a lot more intense last summer and into autumn (see previous post¬†Obsessions¬†for more about that) and it started to spiral, and I had no idea how to manage it. ¬†At the same time, I was being assessed by the community mental health team in the area I’d moved to but was told (again) that I couldn’t access services because of autism. ¬†I got really frustrated and asked why I was taking high doses of psychotropic medications if it was a neurological issue and the psychiatrist said that she could see my point. ¬†So I stopped taking medication completely which I *think* was the right decision (horrible side effects and not worth any minor benefits mood-wise) but since then, the bitch in my head has got worse and more aggressive and the obsessions were so intense that I needed to find another way to manage it.

One of the side effects to antipsychotics had been weight gain and I lost a bit of weight when I stopped taking them which definitely helped to feel more in control, and since then my periods have stopped which has meant that the obsessions are much, much less intense and more manageable. ¬†Just as a disclaimer because I know I don’t usually go into detail about specific thoughts or behaviours in case it triggers anyone- I am not at a massively low weight and I don’t plan to be; the weight loss was genuinely a way to manage obsessions which had got to a completely unmanageable level of intensity and I really didn’t know how else to manage it. ¬†I don’t want a full-on ED relapse which is the main reason I’m back to blogging again and will go into more detail about that in another blog post once I’ve got my head around what I’m actually trying to say!

Last week, a friend made me aware that I really need to learn to manage the ED side of things before it gets out of control which is making me feel really, really scared because I’ve never actually addressed it properly before apart from trying to get out of being inpatient and have found functional ways of basically maintaining it without actually trying to change too much and any attempts I have made haven’t lasted longer than a few weeks but the real difference this time is that she seems to think I can actually change and she does genuinely seem to believe that. ¬†Which maybe doesn’t sound like much but after years of people saying I’m “not ready”, have a “chronic” eating disorder, it would be “too difficult to make changes” because of autism, I’m too “entrenched” or whatever other ways medical professionals put it, it’s very, very weird to hear someone say that they genuinely think I can do it. ¬†Especially since it’s someone I trust absolutely- she’s very direct and honest, and I don’t think she’d just say it. ¬†Feels really weird but it’s also made me feel more positive and interested to try to actually change properly than I think I’ve ever really felt, and that’s weird and scary in itself! ¬†Still trying to process it but will write another, more focussed blog post soon.